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Confused

I wrote a letter to a specialist cancer help group, who have specialist nurses to answer any questions that patients may have. Yesterday I recieved a reply and I am confused now. In the letter I told my background medical history and my current levels of IGg, bone marrow plasma and Bence Jones Protein and …

Family and friends

I really don’t think my family and friends can understand what is going on with my health. I feel like I haven’t explained things well enough, but another part of me says that they do understand but just wont talk about it. I have to try and not mention it as I feelĀ  like my …

Don’t worry be happy

I do try to be happy 90% of the time, there’s no use being miserable because you have no control over fate. I will either develop myeloma or I wont, I don’t control that, neither do the doctors, so I refuse to miserable about what I can’t control. I am a happy person and plan …

Numbers rising and worried

My MGUS isn’t stable, I cant do anything to stop my numbers rising so the medical profession tells me. I am not going to pretend that I am not worried because I am and so is my Haematologist which is why she has done more tests, I only wish I could have the results sooner …

OK what is MGUS

After my MGUS diagnosis there was a lot of questions to ask and a lot to learn. The main thing I learned was that I would need to go to the haematology clinic every three months for the rest of my life. I needed monitoringĀ  regularly because MGUS was an unusual finding in someone my …